The Cebu Provincial Government illuminated the Cebu Provincial Capitol in purple at exactly 7 p.m. on February 28, marking its first participation in the global “Light Up for Rare” campaign held annually on the last day of February in observance of Rare Disease Day.
The symbolic lighting highlighted the provincial government’s campaign to promote rare disease awareness and strengthen inclusive healthcare systems, particularly for individuals and families affected by rare conditions.
The initiative was undertaken under the leadership of Governor Pamela Baricuatro.
Dr. Elisse Nicole Catalan, Capitol Piso Public Health Consultant, said joining initiatives such as “Light Up for Rare” is crucial to ensure that patients with rare conditions receive proper recognition, support, and equitable attention similar to other medical conditions.
“These conditions are called rare diseases because only a small number of individuals share the same diagnosis. However, there is something we can do, early detection is key to preventing the condition from worsening,” Catalan emphasized.
In the Philippines, a disease is classified as rare if it affects no more than one in every 20,000 individuals.
Worldwide, more than 7,000 rare diseases have been identified, affecting an estimated 300 million people.
About 80 percent of these conditions are genetic in origin, while 75 percent affect children.
On average, patients wait up to eight years before receiving an accurate diagnosis.
Despite the number of people impacted, only a small fraction of rare diseases currently have approved treatments.
The purple illumination of the Capitol served as a symbol of unity and solidarity with Filipino families living with rare conditions, many of whom face delayed diagnosis, limited access to treatment, and low public awareness.
Purple is the international color for rare disease awareness and represents unity, courage, and hope.
“This initiative goes beyond simply lighting the Capitol in purple. Governor Pam wants to actively engage with rare disease groups so the Province can better understand the kind of assistance they need from the Cebu Provincial Government,” Catalan added.
The Philippines also observes National Rare Disease Week every last week of February pursuant to Presidential Proclamation No. 1989.
The Rare Diseases Act of the Philippines, along with the Universal Health Care Act and the Newborn Screening Act, provides legal and structural support for early detection, improved access to healthcare services, and recognition of persons with rare diseases as persons with disabilities.
“Under Governor Baricuatro’s leadership, the Province of Cebu will continue strengthening its healthcare system through expanded services, policy alignment with national mandates, and multi-sectoral collaboration to ensure that no Cebuano is left behind,” Catalan concluded.
